January 1, 2011 : New Years Goal- BRING THIS BABY HOME!
First, let me introduce you to "Kyle". Kyle is in an orphanage in China. This is his photo and description from the orphanage:
ChildID/Name, Birthdate: Kyle, 12/28/1007
Details: "This sweet little boy has Hemophilia (A Grade). His caretakers say "He is so lovely, likes to play with other kids, he likes to put on new clothes, likes to play with aunt, and its interested in the toy car which he can move. He is handsome, extroverted, and active. We all like him and hope there is someone familiar with this disease who could love and care for Kyle so he can lead a full life with his very own forever family."
As of April I know:
- That he was abandoned at 8 months old in a hospital in Shanghai with a brain bleed due to a fall from a bed, and intramuscular bleed due to IM injection, as well as respiratory infection and anemia.
- That he has had many bleeds so far including GI bleeds and shoulder bleeds.
-That every report I have read so far from the hospital shows him as malnourished and with respiratory infections.
- That he does not sing because "in the instution they do not sing or play music"
- That he likes to play with the other kids, and his aunties and caretakers, and seems behind in some areas only because he cannot attend preschool because of his Hemophilia.
-That he is not allowed to go outside to play because of his Hemophilia.
- MOST OF ALL I KNOW THAT I LOVE HIM AND NEED TO GET HIM HOME AS SOON AS POSSIBLE!
ChildID/Name, Birthdate: Kyle, 12/28/1007
Details: "This sweet little boy has Hemophilia (A Grade). His caretakers say "He is so lovely, likes to play with other kids, he likes to put on new clothes, likes to play with aunt, and its interested in the toy car which he can move. He is handsome, extroverted, and active. We all like him and hope there is someone familiar with this disease who could love and care for Kyle so he can lead a full life with his very own forever family."
As of April I know:
- That he was abandoned at 8 months old in a hospital in Shanghai with a brain bleed due to a fall from a bed, and intramuscular bleed due to IM injection, as well as respiratory infection and anemia.
- That he has had many bleeds so far including GI bleeds and shoulder bleeds.
-That every report I have read so far from the hospital shows him as malnourished and with respiratory infections.
- That he does not sing because "in the instution they do not sing or play music"
- That he likes to play with the other kids, and his aunties and caretakers, and seems behind in some areas only because he cannot attend preschool because of his Hemophilia.
-That he is not allowed to go outside to play because of his Hemophilia.
- MOST OF ALL I KNOW THAT I LOVE HIM AND NEED TO GET HIM HOME AS SOON AS POSSIBLE!
Monday, April 30, 2012
This Port thing is NOT as easy as I thought!
So, all seemed to be fine after Ao Zhen's Port surgery on April 10th. Although that wasn't quite what I expected either. He ended up getting stuck with IV's and blood draws much more than he should have as they did not "access" the port during surgery, and there was a lot of back and forth between doctors and surgeons as to wether we could even access it (which means basically leaving a needle in it, with a line attached so that I could easily give him the Factor he would need for a week following the surgery at home)prior to leaving the hospital. If not it would have been a nightmare as he would have had to be stuck 2 X a day at home for 5 days. That did not happen and they did end up accessing it for me.
So , all was well, Port looked great. Until last weekend- Saturday April 21st I noticed his suture line was oozing a little and was a little more open at one end. He also had a fever of 99.2 which is scarey with a port. They told me not to worry about it that night unless he fever went over 101 or the actual Port site (which is above the suture line) started looking red or inflamed.
Sunday, his fever was gone but the wound was open more...looked really bad and they told me to take him to Hopkins ER.
So...they admitted him to reopen the next day. There was a chance that the whole port would have to be removed and replaced. He got an IV stick to place a catheter in, and a blood draw that night to do blood cultures because he got a fever again of 101.8. What a nightmare. So, the next day they put him under, opened him back up cleaned up the wound which had a hematoma under it and thank goodness were able to leave the port in. The culture of the wound site showed staph infection, so he was put on IV antibiotics. We had to stay in the hospital until Wednesday, when the blood culture came back clear and everyone was comfortable sending him home. All of this after another catheter had to be placed, because the other one had come out of the vein. This poor child was stuck so many times its ridiculous. And the whole point of the Port was to avoid the whole process of trying to probe and torture him to find veins. Plus the fact that again the port could not be accessed and he had to receive Factor until Friday...so they sent him home with an IV in his hand that came out Thursday night..so we had to go to the ER again Friday night for more sticks- and the sticks didn't even work. They absolutely could not get a vein without it blowing, so we just gave up and had to make the decision to skip Friday's factor dose.
Its really been a disaster...such a disaster that I am going to wait for many more months before having Max done.
Here are some pictures of my little trooper. He was such an awesome and brave boy in the hospital. He really is such a good patient...all the nurses were apparently fighting over who got to take care of him every time there was a shift change.
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Young babies tend to be noisy breathers in general, because their airways are narrow and filled with lots of bubbly secretions. The air passing through these puddles of secretions cause lots of different vibratory sounds, similar to the musical sound produced by a reed instrument. That's all snoring is: the sound produced by the vibrating soft tissues of the airway.
ReplyDeleteMost of the time, these sounds are just a noisy nuisance that gradually subsides as baby's airways grow and as he learns to swallow excess saliva. Sometimes snoring can be a clue that the breathing passages are not as clear as they need to be. When the breathing passages are obstructed, baby has to breathe harder to move air past the obstructions, which produces the sound of snoring. Here are some ways to keep snoring in check: best crib mattress
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ReplyDeleteWOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES.
ReplyDeleteI have been a patient of hemophilia . I had tried a lot of anti viral med prescribed to me by doctors over the years but I could not see any improvements in my symptoms. One day while going through the internet , i got to know about this great Herbal Dr who uses his herbal remedies in curing people from hemophilia,quickly i contacted him and he prepared a herbal medication for me which i received and used as instructed. After few weeks the improvement were very visible. the pain and tightness in the joints stopped and the sores started to heal. I would recommend this to all my friends,families,around the globe suffering from hemophilia.you can contact him through his email on drwilliams098765@gmail.com.for advice and for his product THANKS TO YOU ONCE AGAIN DR WILLIAMS
As a sign of gratitude for how my husband was saved from hemophilia, i decided to reach out to those still suffering from this.
ReplyDeleteMy husband suffered hemophilia and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the herbal cure to hemophilia . I never imagined hemophilia has a cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one months he was fully okay even up till this moment he is so full of life.hemophilia has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony.
I am Sophie from Canada, I once suffered from a terrible and chronic hemophilia ,since 8 years now , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 30 years, this was really a terrible illness ,on thin one day that i was going through the internet,and i came across a post of Mrs kate on how his husband was been cured from hemophilia through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months as prescribed by Dr Williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again . for more information you can email him on drwilliams098675@gmail.com for help
ReplyDeleteJust wanted to say a huge thank you to Dr Williams for everything he have done in my life. I have been in tears for so many years now, having found that my husband is suffering from hemophilia , lesion after some years of being under extreme stress., . I spent 24 hours freaking out and finally calmed down after reading some testimony on here about Dr Williams herbal medicine to hemophilia . The moment came and I mumbled out to my husband about Dr Williams product (with a few tears) and he was AMAZE – . He was just worried about his health, been free from this illness, that was how will order for Dr Williams product on line , after my husband finish taking Dr Williams medicine for just within a period of one month. Will went to the doc together who confirmed that he was hemophilia free.
ReplyDeleteThank you again for being upfront, truthful and taking this pain away from my family for more information about his product you can email him on drwilliams098675@gmail.com i hope you can also help other terrified people in a similar situation.
ALL THANKS TO DR WILLIAMS WITH HIS HERB MY WIFE WAS COMPLETELY CURED FROM HEMOPHILIA .
ReplyDeleteIs my pleasure to comment on this site and i thank the admin of this site for his/her great work so far.one of the happiest moment in my life was when the doctor confirm that my wife is been free from this illness. this awesome moments makes me the happiest man on earth, I really don't know how to thank DR WILLIAMS for helping my wife get cured for over how many year of suffering from hemophilia. i came across DR Williams contact through a headline news on internet about how DR Williams help a woman to get cured of her hemophilia and so many other with similar body problem ,i contacted him and he told me how to get his herb,few day later he sent me the herbal portion which my wife take every morning for 28 days, and his medicine was able to cure her completely from hemophilia. and now she very mush okay without any side effects whatsoever, If you have hemophilia, you can contact him on his email address drwilliams098675@gmail.com for advice and for his product.