I cannot believe as I have finally come back to this blog how fast time has gone by and how much has happened since my last post. I am going to do a fairly quick update and then I would like to keep this blog up to date so I can focus on Hemophilia and our daily lives with it for others to read!
So....all was going fine for both of my boys after my last post about their new Ports. I have been easily and successfully infusing them at home through ports 3X a week and it really has been a very easy journey Hemophilia wise although we have had a few bumps in the road that are Hemophilia related.
But, In October 2013 our lives were forever changed. My biological son, Max, at the age of 4 was diagnosed with APML - Accute Promylecytic LEUKEMIA. I cannot even begin to explain the feeling of that diagnosis. Nor can I beging to explain the heartache, the pain, the chemo, the journey as it would take way too long. I can sum up the past two years. I lost my job of 17 years basically because I had to be home caring for my son with Leukemia. That is another story in itself. My mother, my lifeline, the other "parent" to my children...battled Lymphoma and won...and then she died during Max's treatment in February 2014 from a stroke. I have walked through the past 2 years in a complete daze honestley.
I am happy to report as of today: Max is cancer free and probability of recurrence is very very low. I have tried to restart my career and started a new job in January 2015- although its been a struggle without my mom's help with the boys. BOTH boys are doing incredibley well and thriving. Max will start First Grade in the fall, and AoZhen - who now prefers to go by Jake- will start Second grade! He has been absolutley a blessing and we have had no adjustment issues really at all. He does suffer from ADHD, but at this point just needs meds to sleep.
Also....I have gotten engaged - oh yes- also I was divorced not long after my last post! I now live with my boys, my fiancee, his 2 kids 16 year old girl and 19 year old son. And my beautiful 19 year old daughter is also home with us when not in college!
SO- my goal now is to keep this post up to date with our Hemophilia journey. I hope and pray that is the only medical issue that is going to be addressed from here on out! Max still deals with autism, but really is doing pretty darn well and is on the mild side of the spectrum.
I will post some pictures later and update more as the days go on. We have struggled with numerous Port infections...only with Max. Max is on his 3rd Port at this point. We used the port so much during his cancer treatment I believe that is why. We have gone through trying to learn to Peripherally stick the boys veins so we can live life without these ports some time in the near future. Thats been a struggle also- even with a homecare nurs coming to help. But, I still try and sometimes have luck hitting their veins and giving factor that way which is a great feeling!
More to come!
January 1, 2011 : New Years Goal- BRING THIS BABY HOME!
First, let me introduce you to "Kyle". Kyle is in an orphanage in China. This is his photo and description from the orphanage:
ChildID/Name, Birthdate: Kyle, 12/28/1007
Details: "This sweet little boy has Hemophilia (A Grade). His caretakers say "He is so lovely, likes to play with other kids, he likes to put on new clothes, likes to play with aunt, and its interested in the toy car which he can move. He is handsome, extroverted, and active. We all like him and hope there is someone familiar with this disease who could love and care for Kyle so he can lead a full life with his very own forever family."
As of April I know:
- That he was abandoned at 8 months old in a hospital in Shanghai with a brain bleed due to a fall from a bed, and intramuscular bleed due to IM injection, as well as respiratory infection and anemia.
- That he has had many bleeds so far including GI bleeds and shoulder bleeds.
-That every report I have read so far from the hospital shows him as malnourished and with respiratory infections.
- That he does not sing because "in the instution they do not sing or play music"
- That he likes to play with the other kids, and his aunties and caretakers, and seems behind in some areas only because he cannot attend preschool because of his Hemophilia.
-That he is not allowed to go outside to play because of his Hemophilia.
- MOST OF ALL I KNOW THAT I LOVE HIM AND NEED TO GET HIM HOME AS SOON AS POSSIBLE!
ChildID/Name, Birthdate: Kyle, 12/28/1007
Details: "This sweet little boy has Hemophilia (A Grade). His caretakers say "He is so lovely, likes to play with other kids, he likes to put on new clothes, likes to play with aunt, and its interested in the toy car which he can move. He is handsome, extroverted, and active. We all like him and hope there is someone familiar with this disease who could love and care for Kyle so he can lead a full life with his very own forever family."
As of April I know:
- That he was abandoned at 8 months old in a hospital in Shanghai with a brain bleed due to a fall from a bed, and intramuscular bleed due to IM injection, as well as respiratory infection and anemia.
- That he has had many bleeds so far including GI bleeds and shoulder bleeds.
-That every report I have read so far from the hospital shows him as malnourished and with respiratory infections.
- That he does not sing because "in the instution they do not sing or play music"
- That he likes to play with the other kids, and his aunties and caretakers, and seems behind in some areas only because he cannot attend preschool because of his Hemophilia.
-That he is not allowed to go outside to play because of his Hemophilia.
- MOST OF ALL I KNOW THAT I LOVE HIM AND NEED TO GET HIM HOME AS SOON AS POSSIBLE!
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Max has had to overcome Hemophilia, Leukemia, and Autism? That kid is going to grow up to do amazing things.
ReplyDeleteMy son, 3, has been diagnosed with Autism and is also severe Hemophilia A. It's crazy to know he's not the only one.
WOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES.
ReplyDeleteI have been a patient of hemophilia . I had tried a lot of anti viral med prescribed to me by doctors over the years but I could not see any improvements in my symptoms. One day while going through the internet , i got to know about this great Herbal Dr who uses his herbal remedies in curing people from hemophilia,quickly i contacted him and he prepared a herbal medication for me which i received and used as instructed. After few weeks the improvement were very visible. the pain and tightness in the joints stopped and the sores started to heal. I would recommend this to all my friends,families,around the globe suffering from hemophilia.you can contact him through his email on drwilliams098765@gmail.com.for advice and for his product THANKS TO YOU ONCE AGAIN DR WILLIAMS
Having haemophilia A this means that his body, his immune system, fights off the medicine – the infused factor VIII. The alternative clotting factors that we used to control bleeding were much less effective. His medical condition was heart broken. Despite our visit to several doctors his health wasn't getting better. He was subjected to different medications, by many doctors for treatment without the assurance of having a permanent cure. Having a son with hemophilia and then, the added challenge of an inhibitor, is not always easy. Suspicion that something wasn’t right began when he was 6 months old due to the heavy amount of bruising which started showing up all over his legs. As a parent, I would love to fix things and make everything better. Fortunately, there have been other positive alternative (Herbal Medicine) though few people doesn't know the challenges of living with hemophilia. If your child is having same problem, do not expose him/her to more danger, use a herbal remedy that is safe and effective. Contact him directly for more info with his email address: sharmash116@gmail.com
ReplyDeleteWOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES.
ReplyDeleteI have been a patient of hemophilia for more then 26 years . I had tried a lot of anti viral med prescribed to me by doctors over the years but I could not see any improvements in my symptoms. One day when going through the internet , i got to know about this great Herbal Dr who uses his herbal remedies in curing people from hemophilia,quickly i contacted him and he prepared a herbal medication for me which i received and used as instructed. After few weeks the improvement were very visible. the pain and tightness in the joints stopped and the sores started to heal. I would recommend this to all my friends,families,around the globe suffering from hemophilia.you can contact him through his email on drwilliams098675@gmail.com.for advice and for his product THANKS TO YOU ONCE AGAIN DR WILLIAMS
As a sign of gratitude for how my husband was saved from hemophilia, i decided to reach out to those still suffering from this.
ReplyDeleteMy husband suffered hemophilia and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the herbal cure to hemophilia . I never imagined hemophilia has a cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one months he was fully okay even up till this moment he is so full of life.hemophilia has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony.
I am Sophie from Canada, I once suffered from a terrible and chronic hemophilia ,since 8 years now , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 30 years, this was really a terrible illness ,on thin one day that i was going through the internet,and i came across a post of Mrs kate on how his husband was been cured from hemophilia through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months as prescribed by Dr Williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again . for more information you can email him on drwilliams098675@gmail.com for help
ReplyDeleteJust wanted to say a huge thank you to Dr Williams for everything he have done in my life. I have been in tears for so many years now, having found that my husband is suffering from hemophilia , lesion after some years of being under extreme stress., . I spent 24 hours freaking out and finally calmed down after reading some testimony on here about Dr Williams herbal medicine to hemophilia . The moment came and I mumbled out to my husband about Dr Williams product (with a few tears) and he was AMAZE – . He was just worried about his health, been free from this illness, that was how will order for Dr Williams product on line , after my husband finish taking Dr Williams medicine for just within a period of one month. Will went to the doc together who confirmed that he was hemophilia free.
ReplyDeleteThank you again for being upfront, truthful and taking this pain away from my family for more information about his product you can email him on drwilliams098675@gmail.com i hope you can also help other terrified people in a similar situation.
Thanks to Dr Williams I am so happy today, my wife have been suffering from hemophilia for the past 8 years now, and i have spent a lot on western drugs which has all proved abortive, i have tried all means in life to get my wife out of this , but there was no answer until i decided to try herbal solution and i found Dr Williams online and i contacted him and after she took his medication as instructed, my wife is now completely cure from hemophilia within those week of usage, i am so much happy, thanks to Dr Williams for helping me get my wife life back again without any form of crisis, i promise to tell your name and good deeds to the whole world,if you have someone with hemophilia you can email him on drwilliams098675@gmail.com for more information .
ReplyDeleteALL THANKS TO DR WILLIAMS WITH HIS HERB MY WIFE WAS COMPLETELY CURED FROM HEMOPHILIA .
ReplyDeleteIs my pleasure to comment on this site and i thank the admin of this site for his/her great work so far.one of the happiest moment in my life was when the doctor confirm that my wife is been free from this illness. this awesome moments makes me the happiest man on earth, I really don't know how to thank DR WILLIAMS for helping my wife get cured for over how many year of suffering from hemophilia. i came across DR Williams contact through a headline news on internet about how DR Williams help a woman to get cured of her hemophilia and so many other with similar body problem ,i contacted him and he told me how to get his herb,few day later he sent me the herbal portion which my wife take every morning for 28 days, and his medicine was able to cure her completely from hemophilia. and now she very mush okay without any side effects whatsoever, If you have hemophilia, you can contact him on his email address drwilliams098675@gmail.com for advice and for his product.
As a sign of gratitude on how my husband was saved from hemophilia, i decided to reach out to those still suffering from this.
ReplyDeleteMy husband suffered hemophilia and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and they left the contact of this doctor who had the herbal cure to hemophilia . I never imagined hemophilia has a cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one months he was fully okay even up till this moment he is so full of life.hemophilia has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony.
I am Sophie from Canada, I once suffered from a terrible and chronic hemophilia ,since 8 years now , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 30 years, this was really a terrible illness ,on thin one day that i was going through the internet,and i came across a post of Mrs kate on how his husband was been cured from hemophilia through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months as prescribed by Dr Williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again . for more information you can email him on drwilliams098675@gmail.com for help
ReplyDelete