January 1, 2011 : New Years Goal- BRING THIS BABY HOME!

First, let me introduce you to "Kyle". Kyle is in an orphanage in China. This is his photo and description from the orphanage:


Photobucket

ChildID/Name, Birthdate: Kyle, 12/28/1007
Location, Gender: Asia, Male Agency: Wasatch Adoptions
Details: "This sweet little boy has Hemophilia (A Grade). His caretakers say "He is so lovely, likes to play with other kids, he likes to put on new clothes, likes to play with aunt, and its interested in the toy car which he can move. He is handsome, extroverted, and active. We all like him and hope there is someone familiar with this disease who could love and care for Kyle so he can lead a full life with his very own forever family."

As of April I know:
- That he was abandoned at 8 months old in a hospital in Shanghai with a brain bleed due to a fall from a bed, and intramuscular bleed due to IM injection, as well as respiratory infection and anemia.
- That he has had many bleeds so far including GI bleeds and shoulder bleeds.
-That every report I have read so far from the hospital shows him as malnourished and with respiratory infections.
- That he does not sing because "in the instution they do not sing or play music"
- That he likes to play with the other kids, and his aunties and caretakers, and seems behind in some areas only because he cannot attend preschool because of his Hemophilia.
-That he is not allowed to go outside to play because of his Hemophilia.
- MOST OF ALL I KNOW THAT I LOVE HIM AND NEED TO GET HIM HOME AS SOON AS POSSIBLE!

Sunday, May 27, 2012

Max has his port now!! YAY all done!


So, we are all done with port surgery's on both these kids!  WOOHOO!  Max I made sure everything went as I needed to go as Ao Zhen's had some mix ups.  They did not want to leave his port access after surgery (some docs don't do, and some do).  I had NO idea of this.  This means when I am supposed to go home and factor him 2 times a day for 5 days...what am I gonna do???  Take him to be stuck in the vein again...oh no way!   So I insisted, and they did access Ao Zhen's thank goodness.  Max, I made sure all ducks were in a row because I know this surgeon does not like to leave accessed.  So I got them to put a PICC line in Max while he was under.  This allowed them to draw blood for levels from the PICC, and through the catheter they could give him factor.  And of course has been a god send since I have gotten home and been able to infuse him so easily.  Poor AoZhen got stuck way too many times when he had his done, it was ridiculous as the point of the pick is NOT to stick veins!!  But hopefully anyone reading can learn from my experiences!
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